This is care advisory service for anyone affected by Huntington’s Disease, whether they are a sufferer, relative, carer, friend, family member, or professional.

Referral Procedure

You can contact us directly by post or telephone.

Service Provided

The role of the Huntington's Disease Regional Care Adviser is to:

• Provide a listening ear.
• Help families receive support, care and advice that they want and need to enable them to cope.
• Explore grants and funding for care and treatment.
• Access information on benefits, specialist equipment, respite, holidays, etc.
• Increase knowledge and skills.
• Assist in co-ordinating care through contact with health and social care professionals and non-statutory services such as the Citizens Advice Bureau.
• If you would like more information on the support and services available for families affected by Huntington’s Disease and how to access them, or if you wish to talk things through with someone who understands and may be able to help, call your Huntington’s Disease Association Regional Care Adviser.

For more information please contact us.

Contact Details:

Huntington's Disease Association

Clinical Genetics Unit
Birmingham Women’s Hospital
Birmingham
B15 2TG

Telephone: 0121 627 2636
Telephone: Head Office 020 7223 7000
Fax: 0121 627 2618

Opening Hours: 24 hours a week: answerphone service.